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Posts tagged bladder exstrophy

Not going to pick at the scabs. -OneWord365- Peace

I had a couple really tough months… when I was trying to write a book about my son’s birth story. Part of me wonders if the emotion from it all was so overwhelming that I couldn’t figure out how ┬áto express it or even how to do everything else I needed to in my life. […]

My undoing and my healing

My child. I love my child. How can it be that the person actually “suffering” from a condition can be stronger than the one witnessing the struggle? I know many would say that my son just doesn’t know better yet. He didn’t then, viagra sale but he knows a lot about things now… As much […]

My Bucket List

My Bucket List (Far from finalized) Keep myself as healthy as possible–Weight-wise, no rx ability-wise, food-wise– “All the better to accomplish my goals, dear” Drink a cup of the most delicious and expensive coffee in the world Get little man to Dr. Gearhart for his BNR Homeschool Ney until at least “6th grade” Buy a […]

Here’s looking at you, kid…

Last night Neylan was hiding behind some of my old Fine Arts dresses from college. He looked out from behind a blue and black dress saying, case “I see you, treat Daddy.” He then hid himself behind dress again. The Husband looked up from his work and replied, medical “I can’t see you. The dress […]

I only want the best…

I know I am not the only mother who has a child with bladder exstrophy. I know I’m not the only mother (or parent) who has felt so frustrated and confused. I have one HUGE problem that needs to be overcome. My problem is that I only want the best for my child and I […]

Trying to get Neylan to Dr. Gearhart in Baltimore, MD!

After talking to a mother on the bladder exstrophy boards about how my husband and I could get Neylan down to Maryland to see Dr. Gearhart, WE HAVE TAKEN THE PLUNGE! I contacted Dr. Gearhart and his secretary about him seeing Neylan. He’s going to do the consult FREE OF CHARGE in his office so […]