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Praying for those you view as enemies

April 22nd, 2012

Praying Hands by Albrecht Durer (I believe this is the painting that I always remember hanging in my Grandmother's living room.))

Hi Guys! It has been a long time since I’ve written. Ok… not my longest, but it has still been a while. Firstly, a little background on what I’ve been doing recently, as it has EVERYTHING to do with this post. Recently, I started going through a book called “Becoming the Woman I want to [...]

Broccoli over Tuna?

April 8th, 2012

Neylan Broccoli

Neylan decided that he didn’t want to eat the DELICIOUS fish today for lunch… instead he decided that he wanted to eat RAW BROCCOLI! If you click on the link below you’ll see the GIF of Neylan smashing his half eaten “boccoli twee” on his pepperonis. http://www.jittergramapp.com/#p/0957A271-D348-4721-87EE-1739B1D327A1

Tuna

April 8th, 2012

I just took Neylan into the room for a “poopie diapie change” and remembered that I needed to turn off the tuna steaks cooking in the kitchen. Abbie was in the kitchen/living room at his desk coding so I yelled, “Abbie! Turn off the tuna for me!” and Neylan decided he’d say it too. It [...]

Quick thought…

April 6th, 2012

While changing Neylan’s diaper I asked, “Who loves Neylan?” “Neyney” he replied. “Good”, I said “Neylan should love himself. Then I asked, “Who else loves Neylan?” “Mommy!” One thing I am trying to be certain of as I raise my child is that he knows beyond a shadow of a doubt that I love him [...]

We made it! THANK YOU ALL!

April 4th, 2012

Thank you

Dear friends and family, We just wanted to thank you all again for your wonderful donations and also give you an update on Neylan. On Tuesday night we drove down to my parents’ house so that we could catch the Amtrak down from Providence to Penn Station in Baltimore, MD. Our little family got sick [...]

“Doot-doo”

February 3rd, 2012

How it's made

Has the music of a song ever been so catchy that the words didn’t and probably never would matter? Our house-mates watch a certain show almost every night when they eat dinner. It’s educational and the intro song is so catchy that we all hum it: even Neylan. And there are times he wants to [...]

Trying to get Neylan to Dr. Gearhart in Baltimore, MD!

January 26th, 2012

dr. gearhart

After talking to a mother on the bladder exstrophy boards about how my husband and I could get Neylan down to Maryland to see Dr. Gearhart, WE HAVE TAKEN THE PLUNGE! I contacted Dr. Gearhart and his secretary about him seeing Neylan. He’s going to do the consult FREE OF CHARGE in his office so [...]

Prayer of a BE Mom

January 26th, 2012

God, Help me be calm. I am so overwhelmed with being a mother who needs to know so much for the sake of her child’s well being. I am overwhelmed with the new knowledge I gain every day and wanting to remember it all so that I may be able to be my son’s advocate. [...]

This title has been censored due to infingement

January 17th, 2012

Caption not available due to censorship

I’ve censored the following, in protest of a bill that gives any corporation and the US government the power to censor the internet–a bill that could pass THIS WEEK. To see the uncensored text, and to stop internet censorship, visit: http://americancensorship.org/posts/39916/uncensor █████ I am ███████ ████ so ████ ██████. So ████ ████████ ████ be ███████ [...]

December 2011

December 29th, 2011

Steph, Jon, Me, Neylan and Abbie after Christmas Eve Service

It’s been way too long since I took the time to write. I realized that I really needed to today.  My heart’s gone through a bit of a roller coaster ride with everything that has gone on recently but, if for no other reason than me growing in faith and trust in God, it’s been [...]